Actor Colin Farrell has opened up about the difficult decision to move his son James, who has Angelman syndrome, into a long-term care facility. In an interview this week the actor, 48, revealed he ...
(COLORADO SPRINGS) — When a child is born, so is a whole host of hopes and dreams. “When you hold your child for the first time, the first time you hear their cries… you play out their lives ...
UC Davis Health researchers are testing a new gene therapy that could be transformational for patients with Angelman syndrome, a rare ...
Ultragenyx Pharmaceutical Inc. announced the dosing of the first patient in its Phase 3 Aspire study, which is investigating the safety and efficacy of GTX-102, an investigational antisense ...
Back in August, Irish actor Colin Farrell won widespread praise when he emotionally opened up about the “terrifying” reality of having a child with disabilities in his first interview about his ...
NISSWA — Two bicyclists are embarking on a 4,200-mile trip across the country for a deeply personal cause. Known as “Bike 4 Briar,” the team includes Todd Downey and Charlie Nuck, who seek to raise ...
A Broken Hill man has run to Newcastle to raise funds and awareness for a rare condition called as Angelman syndrome.
We had to grieve that life that we had planned for him, but we still have him, and he’s still a beautiful little boy.’ ...