12 Health: Sturge Weber Syndrome
12 Health: Sturge Weber Syndrome
1 month ago
wpri.com
WATCH: Raising awareness of Sturge-Weber syndrome
WATCH: Raising awareness of Sturge-Weber syndrome
1 month ago
wpri.com
Sturge-Weber syndrome: Video, Causes, & Meaning | Osmosis
Sturge-Weber syndrome: Video, Causes, & Meaning | Osmosis
May 6, 2018
osmosis.org
A heartwarming moment from today in Madison: two of our SWF warriors meeting and sharing big smiles. These connections are what this conference is all about—community, courage, and hope. 💙 Thank you to everyone joining us at the CCN/SWFIRN Science Conference, and special thanks to our sponsor UCB for making gatherings like this possible. If you’d like to support research and families, our auction is open now: https://charity.pledgeit.org/SWFScientificMeeting #SturgeWeber #SWS #RareDisease #Scie
A heartwarming moment from today in Madison: two of our SWF warrio…
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🔥 Join Holley by passing the torch for The Sturge-Weber Foundation! You can make a real difference in the lives of those affected by SWS. 🔥 What else can you do?👇 👍 Smash that like button 🔄 Spread awareness by sharing this post 💬 Show your support with a heartfelt comment 📢 Tell us your story ✅ Make a real difference by donating at www.Sturge-Weber.org #SWSMonthofAwwareness #SturgeWeberAwareness #Hope #Seizures #Glaucoma #PortWineBirthmark #KlippelTrenaunaySyndrome | The Sturge-Weber Foun
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🔥 Join Holley by passing the torch for The Sturge-Weber Foundation! Yo…
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We appreciate our researchers who support The Sturge-Weber Foundation. ❤️ It is because of their passion for science and helping others that we found the GNAQ gene that causes SWS. Here, Alice Goodman-Khan, a research technician, explains why the family conference last summer is so important. Alice is working with Joyce Bishoff, PhD on zebrafish models. . . . #researcher #sturgewebersyndrome #swfunited #SWFWarrior #sturgeweberfoundation #portwinestain #birthmarks #seizures #portwinebirthmark #ra
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We appreciate our researchers who support The Sturge-Weber Founda…
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30 reactions · 9 comments | SWS Family, listen to this New Year's message from The Sturge-Weber Foundation's CEO and founder, Karen Ball!  #sturgeWeberWarrior #sturgeweberstrong #newyear2025 @followers | The Sturge-Weber Foundation | Facebook
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30 reactions · 9 comments | SWS Family, listen to this New Year's m…
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22 reactions | Meet Karen! Hi, I have Sturge-Weber Syndrome. I was dia…
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Chelsey has been living with Sturge-Weber Syndrome since she was b…
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1.2K views · 66 reactions | Fact: a port-wine stain isn't always an indi…
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Board of Directors - WAVE Foundation
Apr 28, 2016
wavefoundation.org
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Can you guess which tree belongs to which SWF staff member? 🎄 Ho…
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There is still time to join us at UC Irvine for this Sturge-Weber Mini-S…
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18 reactions |  Join Julia and Marissa for #SturgeWeberFoundat…
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How to take a dump in the back-country. Fabio Studer tells us in th…
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Pumpkin Spice: Love it or leave it? 🧡 Share your thoughts in the comm…
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16 reactions | Happy Mother's Day #WarriorMama ❤ #sturgewebersy…
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21 reactions | Rare Disease Week Continues as we learn about advo…
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Thank you!! Tina Alster A.I. duPont Hospital for Children| Nemours | T…
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The Reunion of Champions Event has begun!!! #reunionofchampion…
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#sturgeweber #inspiration #motivation #champions #warrior…
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31 reactions | Congratulations to Miss Lily for smashing her 2nd las…
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Believe in YOU! #believe #you #inyou #sturgeweberawareness #…
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Thanks to the American Academy of Dermatology and Consortium for …
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Meet Noah enjoying time with Mom and Dad planting sunflower seeds…
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12 reactions · 5 comments | Let's go back to school with our SWS Warr…
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Dear 2022, Thanks for the memories! #sturgewebersyndro…
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The collaboration was amazing!! So excited that the research meeting…
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We're not just good at looking good, we're good at doing good too! 🙌 We…
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Thankful Thursday reminds us how Thankful we are to have Clinical C…
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